Yesterday the Government announced changes to Funded Family Care, designed to make things more equitable. Here's a brief overview of what's changing: From 14 April 2020, pay rates for family...
Nov20
Announcing the 2019 David Oliver Beacon Award recipient!
The David Oliver Beacon Award is an annual award that honours, acknowledges and celebrates those who have made a significant contribution to the MND community. The theme for 2019 is: Acknowledging...
Nov18
National Council update
At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the...
Nov15
Corporates get icy for MND
This year, MND New Zealand and Angel Street held the first ever Corporate Ice Bucket Challenge; a new initiative encouraging kiwi businesses to raise awareness of motor neurone disease. As...
Oct16
MND Community Survey Findings announced
We’re proud to share the findings of our MND Community Survey, and appreciate the time and effort of those who participated. We know you’ll be keen to see the results,...
Oct09
The Grocery Charity Ball 2019
MND New Zealand was chosen as the charity beneficiary of the Grocery Charity Ball 2019. The premier event on the grocery industry social calendar has directed over $3million to charitable...
Oct03
Outcome of consultation on the changes to the prescribing restrictions of riluzole
We have been closely following the Medsafe consultation on the changes to the prescribing restrictions of riluzole (trade name ‘Rilutek’). In April we raised concerns that some of our clients had...
Sep16
Participants needed to help with Blood Brain Barrier Study
Research is a vital key that will one day help to unlock a cure for MND. The Centre for Brain Research at Auckland University is currently looking for volunteers to...
Sep06
Emirates Team New Zealand launches their first boat and an opportunity for you to get involved!
Bright and early this morning, our major supporter, Emirates Team New Zealand revealed their first AC75 monohull boat to the world at Auckland’s Viaduct Harbour. The boat was christened 'Te...
Sep03
Want to make a difference on MND New Zealand’s National Council?
MND New Zealand supports people living with Motor Neurone Disease, their carers, families and whanau, and the Health Professionals who work with them throughout New Zealand. We’re currently on the...
Living with MND is incredibly challenging, and providing practical support to people living with MND is very important to us. With this in mind - we’re delighted to let you...
West Coast woman Samarra Wright is one of three people in her family currently living with MND .The SOD1 Gene responsible for familial MND is prevalent in Samarra’s family -...
